Schedule of Rhode Island Events
LINKS to things
On
This Page
SPECIAL NOTICE: Scleroderma Doctor of the Year to Speak at November 2009 Meeting
National Scleroderma Awareness Month
RI Scleroderma Group Pages with Images
Photos: 2009 Photos 2008: Group
Fundraiser for a Cure: "Father Aloysius Misgivings" at the Cranston Senior Center
Photos: 2005 2007 Bruce
Diraimo Carole's
Hope Garden
2003 2005
Garden RI
Support Group Awards & Honors
Scleroderma in the News {updated}
What's
New with the RISG
(In the News)
Links
to Elsewhere *
Scleroderma
Foundation
The national organization
for scleroderma information, research, and support.
Needy Meds
Extensive information. How to find help to pay for medication.
I
Have Scleroderma
Scleroderma: Stories and information links.
International
Scleroderma Network
formerly called Scleroderma
from A to Z
Medical information, links, speakers, events,
and more.
Rare
Diseases: Scleroderma Page
Links to many informative sites
Scleroderma
Research Foundation
Studies, links to Yahoo and Lycos searches
about scleroderma, and more.
Scleroderma
Handout
from the National Institutes of Health
of the U.S. Government.
Scleroderma Society
of Canada
just what it says.
Juvenile Scleroderma Network (JSDN)
Schedule of Rhode Island Events
Aulde News: June 13, 2004
Walkathon in Dartmouth, MA.
Thank you to all the great Rhode Island supporters that year!
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Medifocus Guide to Scleroderma is a well-structured and thorough resource for the person with scleroderma or those wishing to know more about the disease. Each guide contains current, relevant scleroderma research organized into categories for easy reading. Free updates are provided for 1 year. The Medifocus Guide also provides an international scleroderma physician finder. Check it out and see for yourself! |
Disclaimer: The links on this page and site are provided as a service to the public. These links do not imply endorsement or support of any programs or medical treatments. The Rhode Island Scleroderma Support Group and the Webmaster are not responsible for the content of any other individual's or organization's web pages.
(Webmaster, Frank L. Fitzpatrick, Cranston, RI)
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(800)
722-4673
|
The Rhode Island Scleroderma Support Group
(401) 781-5013
- RISG -
Serving Scleroderma Patients,
Family, and Friends in
Southern New England
Scleroderma . . .
- Is a chronic, auto-immune connective tissue disease generally classified
as one of the rheumatic diseases.
- Is also commonly known as systemic sclerosis. Scleroderma, however,
can be classified as systemic or localized.
- Symptoms may either be visible, as in the case when the skin is
affected, or invisible when the internal organs are involved.
- Has symptoms that may range from very mild to potentially life threatening.
Scleroderma is NOT . . .
- Contagious.
- Cancerous or malignant in any way.
- Inherited, as a general rule.
Every year, June is
Scleroderma Awareness Month!
Schedule of Rhode Island Events, frequently updated, now through March 2010.
The Rhode Island Scleroderma Support Group (RISG)* meets on the fourth Wednesday of most months at 7:00 p.m. in the Nurses Training Room (2nd floor, handicapped accessible from side entrance), Roger Williams Medical Center, 825 Chalkstone Avenue, Providence, RI 02908, United States of America.
EXCEPTIONS: In November and December we meet on an earlier Wednesday because of the holidays. In January and February we normally take a winter vacation from meetings.
*The support group is not a medical clinic of any kind, but is simply for peer to peer information and assistance.
Again,
EVERY June is National Scleroderma Awareness Month
Help us increase awareness in our
local area!
The Rhode Island Scleroderma Support Group
RISG, Phone Carole, in Rhode Island, USA, at 401-781-5013.
RISG, Phone Laura, in Massachusetts, USA, at 508-761-3546.
Send your comments and
questions to