Scleroderma - Chronicle of
Past Years' Events
In Rhode Island & Surrounding Areas

Rhode Island Scleroderma Support Group

To Current Events
To Rhode Island Scleroderma Support Group

1998
1999
2000
2001
2002
2003
2004
2005
2006 2007 2008 2009 2010
2011
2012 2013 2014 2015  

Usual Meeting Place, unless otherwise indicated:


1998
1999

2000

2001

2002

2003

2004


2005

January 2008

  NO MEETING IN JANUARY OR FEBRUARY

February 2008

  NO MEETING IN JANUARY OR FEBRUARY

March 2008

 

Wednesday, March 26. 7:00 P.M. At our usual meeting place -
2nd Floor, Nurses Training Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI

 
  Speaker: Tadeusz Sztykowski, D.A.C.
  Topic: Acupuncture: Can It Help in the Treatment of Scleroderma?
Refreshments as usual. This is also our 14th Anniversary Party. Wear a blue shirt for the group photo.
  To Top of Page

April 2008

  Wednesday, April 23. 7:00 P.M. At our usual meeting place -
2nd Floor, Nurses Training Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
  Speaker: Attendees
  Topic: Roundtable discussion for planning future events
Refreshments as usual
  To Top of Page

May 2008

  Wednesday, May 28. 7:00 P.M. At our usual meeting place -
2nd Floor, Nurses Training Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
  Speaker: Ginger Lanigan, Ginger Lanigan and Associates
  Topic: Social Security Disability: Who Is Eligiible and Why They Should File.
Refreshments as usual
  To Top of Page

June 2008

  Wednesday, June 25. 7:00 P.M. At our usual meeting place -
2nd Floor, Nurses Training Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
  Speaker: Merhdad Abedi, M.D., Roger Williams Hospital - Dr. Abedi is this year's winner of the Mark Flapan Award
  Topic: The Latest Advances in Research in the Battle against Scleroderma
Event: June is Scleroderma Awareness Month! Refreshments as usual
  To Top of Page

July 2008

  Wednesday, July 23. 7:00 P.M. At our usual meeting place -
2nd Floor, Nurses Training Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
  Event: Our annual indoor picnic
  What It Is: A social and eating festive occasion for scleroderma patients and their friends
Refreshments, PLEASE CONTACT CAROLE ABOUT WHAT YOU SHOULD BRING.
  To Top of Page

August 2008

  Wednesday, August 27. 7:00 P.M. At our usual meeting place -
2nd Floor, Nurses Training Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
  Speakers: All who attend
  Topic: How Best to Combine Ice Cream with Flavorful Supplements to Enhance Tastebud Enjoyment
Event: Annual Ice Cream Social
  To Top of Page

September 2008

  Wednesday, September 24. 7:00 P.M. At our usual meeting place -
2nd Floor, Nurses Training Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
  Speaker: David M. Leader, D.M.D., Tufts University - School of Dental Medicine
  Topic: Maintenance of Your Teeth and Gums for the Scleroderma Patient
Dr. Leader, who recently spoke at our national conference in Manhattan Beach, CA, will address new methods of caring for your precious teeth along with the latest does and don'ts in maintaining a healthy mouth.
Refreshments as usual
  To Top of Page

October 2008

  Wednesday, October 22. 7:00 P.M. At our usual meeting place -
2nd Floor, Nurses Training Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
  Speaker: to be announced
  Topic:
Refreshments as usual
  To Top of Page

November 2008

  Wednesday, November 19. 7:00 P.M. At our usual meeting place -
2nd Floor, Nurses Training Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
  Speaker: to be announced
  Topic:
Refreshments as usual
    To Top of Page

December 2008

 

Wednesday, December 17. 7:00 P.M.
NEW LOCATION FOR THIS MONTH:

Kelly Gazzero Post, Ralph's Restaurant
1418 Plainfield Pike

Cranston, RI 02920
Take Exit 4 off Route 295

COST: $18 per person. Make checks payable to Linda Munroe.

PAYMENT DUE: Saturday, December 6

 
  Event: Join us for a fantastic festive evening of fine food and friendship. Possible guest appearance by our secular Santa, if he's not too busy!
  Annual Christmas Party
Refreshments more than usual!
    To Top of Page

January 2009

  NO MEETING IN JANUARY OR FEBRUARY

February 2009

  NO MEETING IN JANUARY OR FEBRUARY

March 2009

 

Wednesday, March 25. 7:00 P.M. At our usual meeting place -
2nd Floor, Nurses Training Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI

 
  Speaker: James Klinger, MD, of Rhode Island Hospital - Pulmonary Disease & Critical Care Unit
  Topic: Pulmonary Care and Treatment for those with Scleroderma
Refreshments as usual. This is our 15th Anniversary Party. Wear a blue shirt for the group photo.
  Contact Carole or Laura for further information. To Top of Page

April 2009

  Wednesday, April 22. 7:00 P.M. At our usual meeting place -
2nd Floor, Nurses Training Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
  Speaker: Thomas J. Raimondo, DO (Pulmonary Medicine)
  Topic: Scleroderma and Your Lungs: The Importance of Being Monitored
Refreshments as usual
  Contact Carole or Laura for further information. To Top of Page

May 2009

  Wednesday, May 27. 7:00 P.M. At our usual meeting place -
2nd Floor, Nurses Training Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
  Speaker: Harold Horwitz, MD, Rheumatology Associates
  Topic: Rheumatology and Scleroderma
Refreshments as usual
  Contact Carole or Laura for further information. To Top of Page

June 2009

  Wednesday, June 24. 7:00 P.M. At our usual meeting place -
2nd Floor, Nurses Training Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
 

Ice Cream Social

  Contact Carole or Laura for further information. To Top of Page

July 2009

  No Meeting This Month  

August 2009

  Wednesday, August 26. 7:00 P.M.
At $-Hometown Buffet-$, 1245 Bald Hill Road, Warwick, RI
 
  Indoor Picnic
  $12.98 per person
Pay at the Door
  Contact Carole or Laura for further information. To Top of Page

September 2009

  Wednesday, September 23. 7:00 P.M. At our usual meeting place -
2nd Floor, Nurses Training Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
  Speaker: Heather Jones-Stansfield, OTR/L, CHT of Hand Therapy Associates
  Topic: Why a Hand Therapist? Exercises to maintain hand dexterity
Refreshments as usual
  Contact Carole or Laura for further information. To Top of Page

October 2009

  Wednesday, October 28. 7:00 P.M. At our usual meeting place -
2nd Floor, Nurses Training Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
  Speaker:
  Topic:
Refreshments as usual
  Contact Carole or Laura for further information. To Top of Page

November 2009

  Wednesday, November 18. 7:00 P.M. At our usual meeting place -
2nd Floor, Nurses Training Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
  Speaker: Robert Lafyatis, M.D. "Scleroderma Doctor of the Year"
  Topic: Scleroderma Research Now Underway
Refreshments as usual
  Contact Carole or Laura for further information. To Top of Page

December 2009

 

Wednesday, December 16, 7:00 P.M. (This is the third Wednesday because our normal meeting date is so close to Christmas.)

 
  Event: Holiday Party
   Place: Olive Garden [restaurant], 31A Universal Blvd. (just off Route 2, across from Best Buy) Warwick, RI 02886
Information and Cost: $19.00 per person. Vegetarian and children's menus are available.
 

For Reservations and More Information: Contact Linda Munroe at (401) 946-6122 for further information.

Checks should be made payable and mailed to

Linda Munroe

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2010

January 2010

 

February 2010

 
  NO MEETING IN JANUARY OR FEBRUARY

March 2010

     
  Wednesday, March 24. 7:00 P.M. At our usual meeting place -
2nd Floor, Nurses Training Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
  Speaker: Ellen Terz, RRT
  Topic: How to Correctly Breathe Title: Just Breathe
Refreshments as usual 16th Anniversary!
  Contact Carole or Laura for further information. To Top of Page

April 2010

     
  Wednesday, April 28. 7:00 P.M. At our usual meeting place -
2nd Floor, Nurses Training Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
  Speaker: Michele R. Smith, RD
  Topic: Nutrition and Metabolism and the Importance of Meeting your Metabolic Needs vs Dieting to Control Weight
Refreshments as usual
  Contact Carole or Laura for further information. To Top of Page

May 2010

     
  Wednesday, May 26. 7:00 P.M. At our usual meeting place -
2nd Floor, Nurses Training Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
  Speaker: Roundtable
 

Topic: Roundtable and Plans for Ice Cream Social

Refreshments as usual
  Contact Carole or Laura for further information. To Top of Page

June 2010

     
  Wednesday, June 23. 7:00 P.M. At our usual meeting place -
2nd Floor, Nurses Training Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
   Topic: Final Plans for Those Attending the National Conference
  Event: Ice Cream Social and Evening of Fun
Refreshments Ice Cream and All the Fixin's
  Contact Carole or Laura for further information. To Top of Page

July 2010

     
 

Wednesday, July 28. 7:00 P.M.
- LOCATION -
Hometown Buffet, 1245 Bald Hill Road,
Warwick, RI (next to Targets)

 
   
  Topic/Event: Annual Indoor Picnic
Price: $12.75 per person (pay exact amount to Carole)
  Contact Carole or Laura for further information. To Top of Page

August 2010

     
  Wednesday, August 25. 7:00 P.M. At our usual meeting place -
2nd Floor, Nurses Training Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
  Speaker:
  Topic/Event:
Refreshments
  Contact Carole or Laura for further information. To Top of Page

September 2010

     
  Wednesday, September 22. 7:00 P.M. At our usual meeting place -
2nd Floor, Nurses Training Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
  Speaker: Harrison Farber, M.D.:
Doctor Farber was recently the Grand Lecturer at this year's National Scleroderma Conference in Boston, MA.
  Topic: Pulmonary Arterial Hypertension in Scleroderma
Refreshments provided
  Contact Carole or Laura for further information. To Top of Page

October 2010

     
  Wednesday, October 27. 7:00 P.M. At our usual meeting place -
2nd Floor, Nurses Training Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
  Speaker: David Nicholas, president and CEO of DNI; Boston-based, internationally known, professional makeup artist with over 30 years experience
  Topic/Event: The Art of Camouflage Makeup
Refreshments
  Contact Carole or Laura for further information. To Top of Page

November 2010

     
  Wednesday, November 17. 7:00 P.M. At our usual meeting place -
2nd Floor, Nurses Training Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
  Speaker: Bob Baxter of Helios Natural Products
 

Topic: Solutions for Comfortable Living

1. Relieving Numerous symptoms with Helios Natural Products. samples distributed.

2. A Self-Help, Acu-Tap demonstration to relieve stress. An Acu-Tap instruction sheet will be available.

Refreshments
  Contact Carole or Laura for further information. To Top of Page

December 2010

     
  Wednesday, December 15. 7:00 P.M.
(This is the 3rd Wednesday of the month because the normal meeting date is so close to Christmas.)
 
  Event: Holiday Party
  To help ensure a firm headcount, we request you send a $10 deposit per person to Carole. Your deposit will be returned to you when you arrive at the event.
LOCATION: Olive Garden (restaurant), 31A Universal Blvd (off Rte 2 across from Best Buy), Warwick, RI
Food: We will all order our personal choices from the menu.
  Contact Carole for reservations and more information. To Top of Page
   

We hope to see you at our get together and wish you a Joyful Holiday Season and Healthy New Year. However, if you are unable to be with us, our thoughts and best wishes are with you, and we all look forward to renewing our friendships again next March.

 

2011 Events

January 2011

         

February 2011

 
  NO MEETING IN JANUARY OR FEBRUARY

 

March 2011

     
 

Wednesday, March 23. 7:00 P.M.
DIFFERENT LOCATION:
Our former room, 1st Floor, Day Treatment Room-
Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI

This is Carole's last meeting as our leader for the past 17 years! We all love you, Carole!
We can never thank you enough for all you have done for everyone with scleroderma and their supporters.

17th Anniversary Meeting!

 
  Speaker: Leigh Colbert, Actelion Pharmaceuticals US, Inc.
  Topic: Stress Management and Living with a Chronic Illness
Light Refreshments Provided
  Contact Carole or Laura for further information. To Top of Page

 

April 2011

     
  Wednesday, April 27. 7:00 P.M.
1st floor, Day Treatment Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
  Speaker: Roundtable
  Topic: Planning for Future Meetings
Refreshments
  Contact Carole or Laura for further information. To Top of Page

May 2011

     
  Wednesday, May 25. 7:00 P.M.
1st floor, Day Treatment Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
   
 

Group Photo: Wear your RI Scleroderma Group BLUE shirt!

Refreshments
  Contact Carole or Laura for further information. To Top of Page

June 2011

     
  Wednesday, June 22. 7:00 P.M. June is Scleroderma Awareness Month!
1st floor, Day Treatment Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
   Speaker:Ms. Tina Ridondo, Office Leader, H & R Block's East Providence, RI, location
  Topic: Plan now for next year's tax time.
Refreshments
  Contact Carole or Laura for further information. To Top of Page

July 2011

     
 

Wednesday, July 27. 7:00 P.M.
1st floor, Day Treatment Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI

 
   
  Topic/Event: Ice Cream Social
Refreshments Call for information about what to bring.
  Contact Carole or Laura for further information. To Top of Page

August 2011

     
  Wednesday, August 24. 7:00 P.M.
Davenport's, 1925 Pawtucket Avenue, East Providence, RI
 
  $16.99 plus tax per person (separate bills) GROUP RATE
  Topic/Event: Annual Indoor Buffet & Fun

Menu: tossed salad,fresh baked scrod, sliced roast beef, ziti with marinara sauce, homemade focaccia bread, rolls
Desserts: carrot cake, chocolate fudge cake - - soda, coffee

  Contact Carole,RSVP, so she can get a good estimate of attendance.
15 NEEDED for the GROUP RATE!


To Top of Page


September 2011

     
  Wednesday, September 28. 7:00 P.M.
1st floor, Day Treatment Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
  Speaker: Edward Lally, M.D.
  Topic: The Latest Developments in Treating Scleroderma

Notes: Dr. Lally is an old friend and mentor. He helped us found our group and has continued to aid us over the past 18 years.

  Contact Carole or Laura for further information. To Top of Page


October 2011

     
  Wednesday, October 26. 7:00 P.M.
1st floor, Day Treatment Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
  Speaker: Harrison W. Farber, M.D.
  Topic: Pulmonary Arterial Hypertension in Scleroderma

Notes: Doctor Farber was 2010's Grand Lecturer at the National Scleroderma Conference in Boston.

  Contact Carole or Laura for further information. To Top of Page


November 2011

     
  Wednesday, November 16. 7:00 P.M.
1st floor, Day Treatment Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
 
 

Speakers: Donna Nesselbush, RI state senator

 

Mike Rodrigues, MA state representative, Committee for Disabilities

Topic: Disability Concerns

  Contact Carole or Laura for further information. To Top of Page


December 2011

     
  Wednesday, December 14. 7:00 P.M.
Davenport's, 1925 Pawtucket Avenue, East Providence, RI
 
 

Holiday Party / Buffet

 

Menu

  • Tossed salad, rolls
  • Fresh baked scrod
  • Sliced roast beef
  • Ziti with marinara sauce
  • Homemade focaccia bread
  • Desserts: carrot cake, chocolate fudge cake
  • Soda, coffee

Price: $21.62 including tax & tip. Please bring exact amount.
RSVP Carole at 401.241.4659 so we can have a good estimate.

  Contact Carole or Laura for further information. To Top of Page

2012


January & February 2012

     
  No Meetings for these months.
 

 

March 2012

     
 

Wednesday, March 28. 7:00 P.M.
1st Floor, Day Treatment Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI

 
  Speaker: Jeanne Houtchens MS, NP-C, University Medical, Div. Pulmonary, Sleep, Critical Care
  Topic: Aspects of Pulmonary Disease & Scleroderma
Light Refreshments Provided
  Contact Carole or Laura for further information. To Top of Page

 

April 2012

Anniversary Meeting    
 

Wednesday, April 25. 7:00 P.M.
1st Floor, Day Treatment Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI

 
  Speaker: Dr. Edward Lally
  Topic: Advances in the Treatment of Scleroderma
Light Refreshments Provided
  Contact Carole or Laura for further information. To Top of Page

 

May 2012

REMEMBER TO WEAR YOUR BLUE SCLERODERMA SHIRTS FOR THIS YEAR'S GROUP PHOTO!    
 

Wednesday, May 23. 7:00 P.M.
1st Floor, Day Treatment Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI
02908

 
  Speaker: Tracie A. DelSesto, Certified Massage Therapist, holder of a Physical Therapist degree & an MBA in Business
  Topic: Managing Pain Related to Scleroderma
Light Refreshments Provided
  Contact Carole or Laura for further information. To Top of Page

 

June 2012

Anniversary Meeting    
 

Wednesday, June 27. 7:00 P.M.
1st Floor, Day Treatment Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI

 
  Speaker: Jack Armitage, new Executive Director of the New England Chapter
  Topic: What's New in the New England Chapter
Light Refreshments Provided
  Contact Carole or Laura for further information. To Top of Page

 

July 2012

     
 

Wednesday, July 25. 7:00 P.M.
1st floor, Day Treatment Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI

 
   
  Topic/Event: Ice Cream Social and Evening of Fun

Refreshments If you have a favorite Ice Cream Topping or an Ice Cream Scoop, bring them along.

"We" will provide the Ice Cream.

  Contact Carole or Laura for further information. To Top of Page

August 2012

See changes for this month below!!    
 

Wednesday, August 22. 6:30 P.M.
LOCATION:
Granite Farm Restaurant, 50 Danielson Pike, North Scituate, RI (Restaurant phone 401.647.7774)
Granite Farm Restaurant is just east of the center of Scituate Village.

 
   
  Topic: Annual Indoor Picnic, Price: $13.00

Menu: Salad and Soup Bar; CHOICE OF Hamburger, Cheeseburger, or Roast Chicken; Potato Salad, Corn on the Cob, and Watermelon. Soda, Coffee

So we have a good estimate of attendance please RSVP Carole at 401.241.4659.
A $5.00 Deposit per Person is required.

  Contact Carole or Laura for further information. To Top of Page

 

September 2012

     
 

Wednesday, September 26. 7:00 P.M.
LOCATION:
1st floor, Day Treatment Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI 02908

 
  Guest Speaker: Michael York, M.D. of Boston University
  Topic: Dr. York is on the research team of Robert Lafeyatis, M.D., which just won two grants totaling over 11 million dollars from NIAM

Refreshments:

  Contact Carole or Laura for further information. To Top of Page

 

October 2012

     
 

Wednesday, October 24. 7:00 P.M.
LOCATION:
1st floor, Day Treatment Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI 02908

 
  Guest Speaker: James Willsey, Staff Chaplain Pastoral Care, Roger Williams Medical Center
  Topics: Coping with Chronic Illness

Refreshments: Feel free to bring some to contribute for all!

  Contact Carole or Laura for further information. To Top of Page

 

November 2012

     
 

Wednesday, November 28. 7:00 P.M.
LOCATION:
1st floor, Day Treatment Room, Roger Williams Medical Center, 825 Chalkstone Ave., Providence, RI 02908

 
  Guest Speaker: Barbara Smithson, MSN, RN, Clinical Nurse Research Coordinator,
Pulmonary Hypertension Center, Rhode Island Hospital
  Topics: Scleroderma and Arterial Hypertension: Perspectives from the Nursing Community;
What My Nurse Needs to Know to Help Me

Refreshments: Feel free to bring some to contribute for all!

  Contact Carole or Laura for further information. To Top of Page

 

December 2012

     
 

Wednesday, December 12. 7:00 P.M.
LOCATION:
Call for Details!

 
 

Holidays Party

  Carole or Debbie will give you the scoop.

 

  Contact Carole or Debbie for further information. To Top of Page

 

2013

 

2014

2015

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March

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To RI Scleroderma Support Group

Phone Carole Cowell at 401-781-5013